The post below needs an addendum, because things have changed. Not the world, not Mom, not her prognosis. It’s me. Having written what I wrote, I got some advice from someone who’s been through a similar parental illness, and it has made a world of difference. I share it here for two reasons:
1. So you don’t have to worry about me going insane.
2. So, in case someone reading this might be going through a similar situation, you can perhaps benefit from my own mind-shift.
I’ve given lip-service and lip-service only (I now realize) to the fact that Mom will never get better- not in the remainder of her life, not for a single day. There may be moments when her sense of humor or sensory abilities are better than other moments, but- overall- there is a decline in her physical brain and that will continue.
My own frustrations with that situation were born, I know now, from my stubbornness in letting her go. I wanted, if I could, to keep her the way she was, in whatever small ways I thought there were to do that. Thus, I would get upset at her for her continual accusations that staff people in the home are stealing her refrigerator goodies. I’d tear down her hand-written sign of the day, warning them to stop taking stuff, and tell her upsettedly to stop that nonsense!
I’ve been doing that for two months now and it hasn’t helped at all, nor will it ever help at all! Therefore, my advisor suggested, I might try just going along with where my mom’s mind is, instead of trying to push and and pull it back to where I want it to be. And, that attitude has worked for me for three days in a row!
On Wednesday, I put the sign which I had torn off on Tuesday, back up on the refrigerator (as I was filling it with more goodies). “If they take these yogurts, tell me, so I can replace them,” I told her. She was smiling as she promised to do that. So was I.
Her complaining about ears and eyes? “Let’s talk to the Doctor about that the next time we go there,” is my now already-much-practiced response. Instead of trying to prove to her again, to no avail, that we have been to both ear and eye doctors very recently, I’m simply allowing her brain- as it exists this day, in these moments- to be that to which I respond. I’m not trying logic anymore with the mother I used to know, in order to get her step forward from some “hiding place.”
There is no such hiding place, of course. Mom is not making a conscious decision to be suspicious, forgetful, frustrated, or weird. That’s her brain. And there’s not a thing I can do about it other than humoring her, agreeing about everything with her, and keeping her supplied with shelter, food, medications, and my..
daily presence. You read that right- I’ve been there daily for the last three days, and have left each visit in a good mood, not feeling frustrated, and with at least a little hope for myself. I had been losing that, as I knew I was losing her.
So, I’ll be supplying Mom and the entire county (if that’s what she thinks) with snacks for as long as she is able to go the refrigerator and get them. I’ll put more flowers in her room, and more of the halfway-pleasant me back in her life.
I’ll let you know how it continues to go, as a way of saying “thank you” to those who could see what I wasn’t seeing.